Facebook Support Groups
Helping Hands for GAND - "Like" our page on Facebook to follow updates, news, and articles of interest to the GAND community. Edit your settings for "Posts in News Feed" and "Notifications" (both found as a sub-menu to the "Liked" button) to ensure you don't miss anything. Please "like" and comment on posts to help us boost visibility.
GATAD2B Parent Group - This group is for parents and caregivers of individuals with GATAD2B mutations. We seek to build a community of support and to learn from one another. If asking to join the group, you will receive a message from one of our administrators, so please check both your Facebook inbox and "other" folder.
GATAD2B Community - This group is for family members of individuals with GATAD2B mutations and professionals with an interest in GATAD2B. We seek to build a networking community of support and a better understanding of GATAD2B-associated neurodevelopmental disorder. If asking to join this group, please share the reason for your interest with an administrator.
A current case series clinical study is being conducted by researchers at Cedars-Sinai Medical Center in Los Angeles, California. This study aims to better identify the particular features of GAND. If you are interested in learning more about this opportunity, please contact Dr. Tyler Pierson at firstname.lastname@example.org.
Global Genes is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community as they seek to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
Because GAND has a major impact on speech, AAC is highly recommended. Here are a few websites you may find helpful .
Speak for Yourself Users Group (open to anyone who uses AAC or is interested in learning more)