Helping Hands for GAND hosted our 1st GAND Family Gathering June 23-25, 2016, in St. Louis, Missouri. This event was made possible through a generous grant from Global Genes. In attendance were 73 people (and 1 assistance dog) from 18 families representing 19 of the 42 (at the time) known cases in the world. Families were able to learn more about this incredibly rare disorder by connecting with researcher/clinician Dr. Tyler Pierson from Cedars-Sinai Medical Center in Los Angeles, by meeting and hearing from other affected families, and by participating in group discussions. Some of the topics presented and discussed included understanding GAND, advocating for your child in the special education setting, communication, resources for GAND families, and self-help skills. Families also enjoyed local outings and meals together. It was a wonderful time of building relationships with a community of people facing many of the same challenges. Thank you to Global Genes, our donors, and all of the families for making this event possible! We'd love to do this again!
If you would like to learn more about how you can contribute to our mission to support families affected by GAND, please visit our Donation page.